Monday, April 26, 2010

Nice Day

Today was such a beautiful day outside. It was the perfect day weather-wise. It was sunny and windy and hot but not too hot. I think it was high 60s, warm but cool, ya know? Mom and I went for a walk today and it was so much fun. It was so nice to just be outside and do...nothing...but just 'be'. Does that sound corny? Sorry...I just feel like our lives have been 'go, go, go' lately and it was relaxing to do nothing but 'walk' with mom.

So tomorrow I meet with the director of First Steps. Dad is coming home a little bit early so that he can be in on the meeting. I guess we're going to go over a report that the director has written up so that she can send it on to the board to see if I qualify for the program. I've had two assessments done so far - one with a PT and then an's been such a long process. I hope we actually get something accomplished tomorrow.

Not much else going on...I got 2 more teeth last that makes 14 teeth! Holy moly! I'm eating like a real CHAMP these days...I had mashed potatoes, cheese and farmer's market vegetables for dinner tonight (oh, and dad snuck me a few cookies) thanks dad!

Monday, April 19, 2010

Back from Texas

Hey Ya'll! I'm back from back on Thursday and it feels good to be home but I miss the Longley-side of my family :( I had such a good time. The drive out there wasn't bad at all. Mom and I left our house around 730am and picked up great grandma Ward, grandma Longley and Auntie Laura at the Tulsa airport. We continued our drive to Abilene and got to Uncle Donny and Aunt Katie's house around 630 that night.

I met my cousins Coleman and Ethan for the very first time and let me just tell you...they are my new best friends :) Coleman chased me around the whole week and I'd never scooted so fast on my butt as I did then! I got a whole bunch of great new books and cute new clothes...we got our pictures taken - can't wait to see what those look like! We sat in this beautiful field filled with tons and tons of blue flowers. It was amazing.

Gram and Laura left my house this past Saturday and headed back to Massachusetts. Grandma Longley stayed in Texas since she was flying to SC for work. Why does there always seem to be a 'sadness' after being on such a 'high' with family? I was so excited to be with everyone and now I'm sad because I'm not with them anymore. And not knowing when I'll get to see Katie, Donny, Coleman and Ethan again makes me sad :(

Well, mom and I have got a busy week ahead of us so maybe that'll take my mind off of being sad. I meet with the OT tomorrow for the first time...Wednesday, mom said we might go to the zoo...Thursday, I'm trying out the 'tots' class at yoga for the first time and Friday is grocery shopping. Saturday, I think mom has an interview for work and Sunday, we are all going to Silver Dollar City for the first time. I am so excited!

Thursday, April 8, 2010

My Best Friend

Quick post! Take a look at me and my best friend!!!


Okay, I've been gone for a while. Mom has been bad about letting me write before bed. So I'm sneaking out of my crib to do this. I hope you all enjoy it :) Updates - here's what been going on with me...

Well...I had my bronchoscopy on was pretty scary. BUT I'm just glad that it's all over with. For those of you who don't know what's going on with my little lungs...I've had 4 xrays so far...all showing that I have reduced volume in the upper lobe of my right lung. Doc had me on a breathing machine thing for a while but mom and dad couldn't get me to sit still long enough for the stupid thing to we only did that for a week or so.

Anyways, I've been feeling fine. You'd never know that my lung isn't working at 100%. We got the results last night and my cultures came back negative and doc says there is nothing wrong anatomically with my lungs - so this is great news. I will have to go back for another xray in 3 months just to make sure that nothing has come back. He's pretty confident that he 'flushed' everything out during the scope.

Mom and dad were both super troopers Monday morning. I thought mom would be a mess and she only cried once! Here's how that morning went: mom woke me up at 515am! put me in the car...and we got to the hospital around 6am...nurse checked my vital signs...I watched Baby Einstein (thank you Theresa and K!) my IV in my FOOT...ugh!...I cried of course, but did great with it once it was in. Then my scope started around 8ish. The whole thing was about 15-20 minutes...I'd say the worst part was waking up...I was flailing...crying...spitting up blood and saliva...all while mom and dad were trying to hold me.

Once I was able to drink some stuff - I was allowed to go home. I slept when I got home for a little while. It was a LONG day but I'm so glad it's over.

I'll be leaving this weekend for Texas so I won't post until I get back! Sorry! I'll try and post again tomorrow though...I'm going to see my cousins Coleman and Ethan for the first time. I'm so excited :)

Saturday, April 3, 2010

Happy Easter

My internet has been I'm finally back! Ugh! In the meantime...I've had a lot going on. In a nutshell - I'm pretty much a big boy now. I have all 4 favorite things to eat are vanilla pudding, animal crackers and 100 calorie pack cookies...(yes, mom makes sure that I eat my veggies too) don't worry...

Dad bought me a season's pass to the zoo :) Yay! And he took mom and I this past week. I went on the train they had there for the first time. It was so much fun. Now mom and I can go whenever we want - thanks Dad!

Easter is tomorrow and I can't wait to see what the easter bunny is going to bring me!!!

Happy Easter!